4TH ANNUAL ALS ONE Research Symposium

Nov

29

to

Nov

30

4TH ANNUAL ALS ONE Research Symposium

NOVEMBER 29TH & NOVEMBER 30TH, 2021 - VIRTUALLY - Together from afar!

OUR 4TH ANNUAL ALS RESEARCH SYMPOSIUM is coming up fast and we are overjoyed to welcome researchers, scientists, and the entire ALS community including pALS, cALS, and ALS families from around the world for two days of sharing important ALS research and hope.

Held virtually on November 29th & 30th and hosted by our ALS ONE research team: Dr’s Merit Cudkowicz, MD, MSc, Robert Brown, MD, DPhil, James Berry, MD, MPH, and Fernando Vieira, MD, our annual conference, this year with over 25 speakers, promises to be a robust and informative forum to discuss and review research that is underway across the globe to help uncover therapeutic options leading to an ultimate cure for Amyotrophic Lateral Sclerosis (ALS). We believe that we are stronger when we are sharing together and our annual conference has proven to be a tremendous forum to do just that.

PLEASE SEE THE FULL ITINERARY BY SCROLLING BELOW OR VIEW THE GUIDE HERE.

The Symposium is always a wonderful opportunity to discuss new paradigms of ALS clinical drug development and to network with field leaders.

ALS ONE is a partnership of world-leading clinicians, researchers and care providers who have united to expedite their critical research towards a cure for ALS while simultaneously improving the care and quality of life for those currently battling the disease.

**CLICK HERE TO VIEW THE FULL AGENDA, SPEAKER & SPONSOR GUIDE

RSVPs Closed

ALS ONE invites you to join us virtually for 2 days of sharing and collaboration.

HOSTED BY THE ALS ONE RESEARCH TEAM:

Merit Cudkowicz, MD, MSc

Robert Brown, MD, DPhil

James Berry, MD, MPH

Fernando Vieira, MD

ALS ONE's annual ALS ONE Research Symposium, hosted by Drs. Robert Brown, James Berry, Merit Cudkowicz, and Steve Perrin of ALS ONE, brings together researchers and scientists who are working on therapeutic options, and ultimately a cure, for Amyotrophic Lateral Sclerosis (ALS). This year’s topics are comprised of some of the most exciting updates on new and important disease topics in ALS, including:

- From Sporadic ALS (SALS) to Familial ALS (FALS): New biology and therapeutic opportunities.
- New insights into axonal trafficking and MN's.
- HEALEY ALS Platform Trial updates roundtable discussion.

Keynote Speakers

Merit Cudkowicz, MD

Chief of Neurology Massachusetts General Hospital
Julieanne Dorn Professor of Neurology Harvard Medical School
DIrector Sean M. Healey & AMG Center for ALS at Mass General Hospital

Kevin Eggan, PhD

Professor in the Department of Stem Cell and Regenerative Biology at Harvard University, Director of Stem Cell Biology for the Stanley Center for Psychiatric Research at the Broad Institute

Aaron Gitler, PhD

BASIC SCIENCE PROFESSOR Genetics, STANFORD MEDICINE

Erika Holzbaur, PhD

William Maul Measey Professor of Physiology, University of Pennsylvania Perelman School of Medicine

Clotilde Lagier-Tourenne, MD, PhD

Associate Professor of Neurology, Harvard Medical School
Associate in Neuroscience, Massachusetts General Hospital
Healey Family ALS Endowed Chair for Research

Nicholas John Maragakis, M.D.

Director of the ALS Center for cell therapy and regeneration research, co-director of the johns hopkins als clinic and professor of neurology at johns hopkins university

Dorothy (Dori) Schafer, PhD

Assistant Professor
Ineurobiology, University of Massachusetts Medical School
Department

Jeremy Shefner, MD, PhD

kemper and ethel marley chair of neurology and associate director for barrow neurological institute

Michael Ward, MD, PhD

Principal INVESTIGATOR,
INHERITED NEURODEGENERATIVE DISEASES UNIT, NINDS

November 4th: Day 1 Agenda

10:30 – 10:45 AM

Welcome & Introductions

10:45 – 12:45 AM

From SALS to FALS: New biology and therapeutic opportunities

(Talk titles to come)

12:45 – 1:15 PM

Break

1:15 – 2:15 PM

Trial Updates

2:15 – 3:15 PM

New insights into axonal trafficking and MNs

(Talk titles to come)

10:30 – 10:45 AM

Welcome & Introductions

10:45 – 12:45 AM

Industry Updates

12:45 – 1:00 PM

Break

1:00 – 2:00 PM

Industry Updates

2:00 – 4:00 PM

HEALEY ALS Platform Trial Zoom Round Table Discussion

Frequently Asked Questions

Connecting to the meeting?

Q: How do I connect to the meeting?

A: The Zoom meeting link will be posted on this site and sent out to registered meeting attendees no later than 2 weeks prior to the meeting.

Invitees

Q: I would like others from my company to join. How do I go about that?

A: We would love to have them attend! Simply send them the link to register and have them complete the online registration. The symposium is open to researchers and scientists in the ALS industry. The link is: https://2021alsoneresearchsymposium.splashthat.com/

Sponsors

Q: My company would like to become a sponsor. How might we go about that?

A: We would be so grateful for your support! Please contact Jennifer DiMartino, Executive Director of ALS ONE for more information or to secure your sponsorship today. She can be reached at: jen@alsone.org. We are so grateful for your support!

Venue

The health and safety of our members, speakers, and Annual Meeting attendees is our number one priority. After careful consideration, we’ve made the decision to hold the event virtually again this year.

More details to come.

About ALS ONE

ALS ONE is where research and care unite in the fight against ALS.

ALS ONE is a partnership bringing together world-leading ALS researchers, doctors, and care practitioners focused on finding treatments for ALS and novel approaches to improve care and quality of life for individuals currently living with the disease. The unprecedented linking of minds and resources from Massachusetts General Hospital (MGH), University of Massachusetts Medical Center, ALS Therapy Development Institute (ALS TDI), and Compassionate Care ALS (CCALS) is unique for its leadership in efficiency, dedication to innovative research, and commitment to increasing access to care and treatment.

ALS ONE's partnership includes: Dr. Merit Cudkowicz, MD, MSc, Chief of Neurology, Massachusetts General Hospital (MGH); Dr. Robert Brown Jr., MD, DPhil, Chief of Neurology, UMass Medical Center; Dr. James Berry, MD, Co-Director of the MGH Neuromuscular Division and of the MGH ALS Unit; Dr. Fernando Vieira, MD, Chief Executive Officer, ALS Therapy Development Institute; and Ron Hoffman, Founder and Director Compassionate Care ALS (CCALS).

Learn more about ALS ONE online at ALS ONE.org

Our Partners